I am looking for information and/or support with regard to Interstitial Cystitis and Endometriosis?
seasana asked:
Has there been any research conducted with regard to whether or not a catheter can cause Interstitial Cystitis symptoms to become more severe? I underwent three surgeries to deal with Endometriosis. With each surgery I had extreme pain in my urethra immediately upon waking up. Each time the pain was more excruciating. The staff treated me like I was insane and had no solutions or compassion. My insticts suggested that the catheter was causing the problem. They refused to take it out. My last surgery was about a year ago. Since then a Urologist seems to think I have Interstitial Cystitis. In order to determine this for sure one needs to undergo a test involving a catheter. I cannot bring myself to inflict this pain on myself again. If there is anyone who has had any similar experiences, I would appreciate any support. Since my last surgery, I now have daily pain in my urethra. I want to get to the bottom of this. It cost a lot of money to receive this new pain. Anyone?
Has there been any research conducted with regard to whether or not a catheter can cause Interstitial Cystitis symptoms to become more severe? I underwent three surgeries to deal with Endometriosis. With each surgery I had extreme pain in my urethra immediately upon waking up. Each time the pain was more excruciating. The staff treated me like I was insane and had no solutions or compassion. My insticts suggested that the catheter was causing the problem. They refused to take it out. My last surgery was about a year ago. Since then a Urologist seems to think I have Interstitial Cystitis. In order to determine this for sure one needs to undergo a test involving a catheter. I cannot bring myself to inflict this pain on myself again. If there is anyone who has had any similar experiences, I would appreciate any support. Since my last surgery, I now have daily pain in my urethra. I want to get to the bottom of this. It cost a lot of money to receive this new pain. Anyone?
Endometriosis treatment; and Laparoscopic surgery is very cheap in India. There is one company that is very famous in India that arranges surgery for foreigners in India. They are called the Fly2india4health Consultants. I read a lot about them in the Newspapers and about their patient stories. I have also read that they arrange financing for international patients, as all surgery is not covered by insurance or by the stinking NHS.
They also have photos pasted of their International patients. You can checkout their website. The cost savings are incredible. As a doctor I personally believe that your surgery can be easily handled in India, as the quality of Healthcare available here is simply best in the world. The surgeons are USA/UK trained and facilities are 5 star.
My cousin got her IVF (in vitro fertilization) treatment; IUI surgery done there and she is more than very happy with the results. She is all praise for Fly2india4health Consultants. She paid just 20% of the cost what she was quoted in USA and it was like a wonderful vacation for her. Hope this helps
Source(s):
IC and Endo are often referred to as “Evil Twins.” There is a high preponderance of patients who have both, with one complicating the symptoms of the other.
Often, use of a catheter is used to relieve severe cases of IC; however, it stands to reason that the placement of a cath during surgery might cause additional pain. Even women without IC wake up in pain from the cath; however, this should have subsided with no long term effects. Clearly, something is amiss and you deserve to obtain the proper treatment to be relieved of your pain and regain your quality of life. There may even be Endo involvement of the region, causing additional/complicating symptoms; the pain of which is often mistaken for IC.
I would recommend consulting with one of the Endo specialty centers who have the knowledge, expertise, surgical team, and more importantly, the compassion to help you find the answers and the relief. There are a few throughout the country which immediately come to mind:
Hopefully a free consult with one of the above professionals will shed a little light on what steps to take towards recovery. Good luck and feel better.